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Author Timmermans, Stefan, 1968- author

Title Saving babies? : the consequences of newborn genetic screening / Stefan Timmermans and Mara Buchbinder
Published Chicago ; London : The University of Chicago Press, 2013
©2013
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Description 1 online resource (xii, 307 pages) : illustrations, map
Series Fieldwork encounters and discoveries
Fieldwork encounters and discoveries.
Contents Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening
Summary In this volume, Stefan Timmermans and Mara Buchbinder evaluate the consequences and benefits of state-mandated newborn screening - and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology
It has been close to six decades since Watson and Crick discovered the structure of DNA and more than ten years since the human genome was decoded. Today, through the collection and analysis of a small blood sample, every baby born in the United States is screened for more than fifty genetic disorders. Though the early-detection of these abnormalities can potentially save lives, the test also has a high percentage of false positives, inaccurate results that can take a brutal emotional toll on parents before they are corrected. Now some doctors are questioning whether the benefits of these screenings outweigh the stress and pain they sometimes produce. In this book the authors evaluate the consequences and benefits of state-mandated newborn screening, and the larger policy questions they raise about the inherent inequalities in American medical care that limit the effectiveness of this potentially lifesaving technology. Drawing on observations and interviews with families, doctors, and policy actors, the authors offer this ethnographic study of how parents and geneticists resolve the many uncertainties in screening newborns
Bibliography Includes bibliographical references (pages 265-293) and index
Notes Online resource; title from digital title page (EBL platform, viewed September 19, 2014)
Subject Genetic screening -- Social aspects -- United States.
Medical screening -- Social aspects -- United States.
Newborn infants -- Diseases -- Diagnosis -- Social aspects.
Newborn infants -- Medical examinations -- Social aspects -- United States.
Genetic Diseases, Inborn.
Infant, Newborn, Diseases.
Infant, Newborn.
Neonatal Screening.
Form Electronic book
Author Buchbinder, Mara, author
LC no. 2012019820
ISBN 0226924998 (e-book)
1283833735 (MyiLibrary)
9780226924991 (e-book)
9781283833738 (MyiLibrary)
(cloth ;) (alkaline paper)
(cloth ;) (alkaline paper)