| Description |
1 online resource (xxxiv, 519 pages) : illustrations (some color) |
| Contents |
Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices / Luc Deliens -- Experience of End-of-Life Issues by People with Intellectual Disability / Roger J. Stancliff, Michele Y. Wiese, Philip McCallion, and Mary McCarron -- Suicide and Autism : A Lifespan Perspective / Darren Hedley, Susan M. Hayward, Alison Clarke, Mirko Uljarević, and Mark A. Stokes -- Advance Care Planning with and for People who have Intellectual and Developmental Disabilities / Jacqueline McGinley and Deborah Waldrop -- Decision-Making at the End of Life : Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany / Sabine Schäper -- How People with Intellectual Disability are Dying and Implications for Quality Care / Jane Bernal, Michele Y. Wiese, and Stuart Todd -- Living and Dying Well with Dementia / Mary McCarron, Andrew P. Allen, Niamh Mulryan, Martina Leigh, Louise O'Reilly, Cathy McCarthy, Pamela Dunne, Evelyn Reilly, and Philip McCallion -- Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers / Lisa A. Ferretti, Mary McCarron, and Philip McCallion -- Supporting People with Intellectual Disability at End of Life : Moral Distress among Staff Caregivers During COVID-19 / Mary McCarron, Kathyan Kelly, Philip McCallion, Éilish Burke, Margaret Haigh, and Andrew Wormald -- Accessible Funerals and People with Intellectual Disability / Rachel Forrester-Jones, Philip McCallion, Mary McCarron, Roger J. Stancliffe, and Michele Y. Wiese -- End-of-Life Doulas and People Living with Intellectual and Developmental Disability / Carolyn Ellison -- Palliative and End-of-Life Care for Children with Intellectual Disabilities / Carmel Doyle and Claire Quinn -- End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability / Hille Voss, Joanne Watson, and Melissa J. Bloomer -- The Process of Dying / Karen Ryan -- Use of Do-Not-Resuscitate Orders / Philip McCallion, Lisa A. Ferretti, and Mary McCarron -- Positioning the Issues : An Agenda for Future End-of-life Research, Policy and Practice / Mchele Y. Wiese, Roger J. Stancliffe, Philip McCallion, and Mary McCarron -- End-of Life Resources / Michele Y. Wiese |
| Summary |
"This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning"-- Provided by the publisher |
| Bibliography |
Includes bibliographical references and index |
| Notes |
Online resource; title from PDF title page (SpringerLink, viewed June 16, 2022) |
| Subject |
Terminal care.
|
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Palliative treatment.
|
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People with mental disabilities -- Death
|
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People with mental disabilities -- Care.
|
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Palliative Care
|
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Palliative treatment
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People with mental disabilities -- Care
|
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Terminal care
|
| Form |
Electronic book
|
| Author |
Stancliffe, Roger, editor.
|
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Wiese, Michele Y., editor.
|
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McCallion, Philip, editor.
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McCarron, Mary, editor.
|
| ISBN |
9783030986971 |
|
3030986977 |
|
