Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age
Summary
By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. The glory of this achievement was short lived as the same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpected fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. Pemberton recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. --From publisher description
Analysis
Multi-User
Bibliography
Includes bibliographical references (pages 305-363) and index
