Helen's illness -- Home from hospital -- Frances and Helen -- Planning the hospice -- Vision becomes reality -- After the opening -- Philosophy at work -- Reflections on years of caring -- Into the new millennium -- Unifying the approach and establishing networks -- Children's hospices come of age -- Governance and funding -- Current and future issues -- Awareness and understanding -- Human dimension -- Staff development -- Broadening the service -- Provision for young adults -- Family accommodation -- Sibling support -- Home care -- Education -- Evaluating the service -- Way ahead
Summary
Helen House - the first hospice for children in the UK - opened in 1982 & has acted as a model for the establishment of respite & terminal hospice care for children ever since. This text records the events surrounding the foundation of the hospice
