Title page-Negotiating Risk; Contents; List of Figures; Acknowledgements; Introduction; Chapter 1-Medical and Public Perceptions of Consanguineoud Marriage and Genetic Risk; Chapter 2-Close Kin Marriages: Some Anthropological Theory and European History; Chapter 3-British Pakistani Cousin Marriages: Balancing Marital Risks; Chapter 4-Medical Surveillance and Diagnostic Uncertainty; Chapter 5-Responding to Reproductive Risk; Chapter 6-Foretelling and Managing Infant Death; Chapter 7-Genetic Screening and the Extended Family; Chapter 8-Genetic Risk in Context; Bibliography; Index
Summary
Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural ster
Bibliography
Includes bibliographical references (pages 253-274) and index
