| Description |
1 online resource (xiii, 214 pages) : illustrations |
| Contents |
Cover; Table of Contents; About the Author; Acknowledgments; Part 1; Chapter 1: With a Whimper; Chapter 2: Melanie; Chapter 3: Empty Hands; Chapter 4: The Sweet Bird; Chapter 5: The Dream Is Me; Chapter 6: Crashing; Chapter 7: Gargling; Chapter 8: Choking; Chapter 9: Vomiting; Chapter 10: In Our Hands; Chapter 11: Oh, God! No! -- Chapter 12: The Bearer of Bad News; Chapter 13: Nestargel; Chapter 14: The Spiral Staircase; Chapter 15: Smiling; Chapter 16: Initial Assessments; Chapter 17: Seeing; Chapter 18: Interpreting; Chapter 19: Swallowing; Chapter 20: Invisible Chains |
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Chapter 21: Love and FaithChapter 22: Mummy Therapy; Chapter 23: A Very Sick Baby; Chapter 24: The Turning Point; Chapter 25: Sleep Feeding; Chapter 26: Thriving; Chapter 27: Naming the World; Chapter 28: Morning Has Broken; Part 2; Chapter 29: Mark; Chapter 30: Seeking Another View; Chapter 31: The Forest or the Trees?; Chapter 32: Joan and Wendy; Chapter 33: The Shade of the Immortelle; Chapter 34: Bobath Therapy; Chapter 35: A Temporary Goodbye; Chapter 36: Yes! -- Chapter 37: Back to School; Chapter 38: Magnificent Helpers; Chapter 39: A Happy 4-Year-Old; Chapter 40: A New Decade |
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Chapter 41: Dynamic ReassessmentChapter 42: CT Scan; Chapter 43: Brain Gazing; Chapter 44: Mercedes and Elizabeth; Chapter 45: The Spreading Branches of the Immortelle; Chapter 46: A Fairy-Tale Morning; Chapter 47: From Fairy Tale to Nightmare; Chapter 48: The Worst of Times; Chapter 49: The End; Chapter 50: She Looks All Right; Chapter 51: Goodbye; Epilogue; Melanie; References; Reader''s_Guide |
| Summary |
Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later. Captivating the reader from page one, Dr. Harry illuminates the full spectrum of her parenting experiences-from the day her ""little bird"" came into the world |
| Notes |
Includes reader's guide |
| Bibliography |
Includes bibliographical references (page 209) |
| Notes |
Print version record |
| Subject |
Harry, Melanie -- Health
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Cerebral palsied children -- United States -- Biography
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Cerebral palsied children -- Family relationships
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BIOGRAPHY & AUTOBIOGRAPHY -- Medical.
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HEALTH & FITNESS -- Children's Health.
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MEDICAL -- Pediatrics.
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Cerebral palsied children
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Cerebral palsied children -- Family relationships
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Health
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United States
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| Genre/Form |
collective biographies.
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Biographies
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Biographies.
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Biographies.
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| Form |
Electronic book
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| Author |
Harry, Melanie
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| ISBN |
9781598573800 |
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1598573802 |
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9781598572872 |
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1598572873 |
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9781598576368 |
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1598576364 |
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