Description |
xxvii, 241 pages : illustrations ; 21 cm |
Contents |
Foreword / Stanley D. Klein -- 1. Childhood -- 1. Your Needs -- The Need to Identify with a Parent's Grief -- The Need for Attention -- The Need to Achieve -- The Need for Information -- Why Parents Have Difficulty Talking About Disabilities -- 2. Your Parents' Marriage -- Your Family's Problem-Solving Style -- Marriages in Trouble -- Fathers -- 3. Your Feelings and How to Cope with Them -- Anger -- Guilt -- Embarrassment -- Help for Siblings -- 4. How Did You Get That Way? -- Type and Severity of the Disability -- Cystic Fibrosis -- Cerebral Palsy -- "Invisible" Disabilities -- Hearing Impairment -- Mental Retardation Requiring Limited Support -- Autism Spectrum Disorder -- Mental Illness -- When the Disability Occurs -- Birth Order and Gender -- When the Younger Sibling Surpasses the Older -- Size of the Family -- 2. Adolescence -- 5. Adolescent Angst -- Embarrassment with New Friends -- Mental Illness -- Fitting In -- Life Is Unfair -- Anger and Frustration -- Guilt -- Getting Help -- Love and Pride -- 6. Who Are You? -- Asking to Be Included in Family Discussions -- The Search for Identity -- Fear of Abandonment -- Peer Pressure -- 3. Adulthood -- 7. Someone to Talk To -- Deal with Anger -- Talk to Someone -- SibNet -- Friends -- 8. Your Relationships -- Caretakers -- Escape Artists -- Influence of a Sibling's Disability on Potential Relationships -- When Do You Bring up the Disability? -- Choosing Friends -- Relatives -- 9. Your Career -- Choosing Human Services Work -- When the Human Services Field Is Not the Right Choice -- 10. Do You Want to Have Children? -- Prenatal Tests to Detect Disabilities -- Deciding Whether to Have Children -- 11. Who Will Take Care of Your Sibling? -- Talk to Your Parents About the Future -- Find the Right Lawyer -- Determine Living Arrangements -- Decide Who Will Care for Your Sibling -- Persuade Parents to Let Go -- Mental Illness -- 12. It Feels Like Love -- Love and Pride |
Summary |
Emotional and enlightening, this book captures the joys and challenges of having - and being - a 'special sibling'. Author Mary McHugh, sister of a man with cerebral palsy and mental retardation, weaves together a lifetime of memories and reflections, relevant research, and interviews with more than 100 other siblings and experts. Exploring a spectrum of feelings - from anger and guilt to love and pride - McHugh helps readers understand the issues siblings encounter in childhood, adolescence and adulthood |
Bibliography |
Includes bibliographical references (pages 223-226) and index |
Subject |
People with disabilities -- Family relationships -- United States -- Case studies.
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Brothers and sisters of people with disabilities -- United States -- Psychology -- Case studies.
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People with disabilities -- Family relationships -- Case studies.
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Brothers and sisters -- Psychology -- Case studies.
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Brothers and sisters -- United States -- Psychology -- Case studies.
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Sibling Relations.
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Disabled Children.
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Genre/Form |
Popular Work.
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Case studies.
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LC no. |
2002028179 |
ISBN |
1557666075 |
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