Title Challenges and opportunities in using residual newborn screening samples for translational research : workshop summary / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies

Published Washington, D.C. : National Academies Press, ©2010

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Description 1 online resource (xv, 67 pages) : illustrations Contents Newborn screening as a public health program -- Uses of residual newborn screening samples in research -- Concerns about the use of residual newborn screening samples -- Review and consent in the use of residual newborn screening samples -- Parental and public education -- Workshop overview and wrap-up Summary "Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research." Bibliography Includes bibliographical references Notes Print version record Subject Neonatology -- Research -- Moral and ethical aspects Newborn infants -- Diseases -- Diagnosis. Newborn screening. Newborn infants. Public health. Bioethics. Neonatal Screening Genetic Diseases, Inborn -- diagnosis Neonatal Screening -- ethics Biomedical Research -- ethics Translational Research, Biomedical -- ethics Translational Research, Biomedical Blood Chemical Analysis -- ethics Infant, Newborn Blood Specimen Collection -- ethics Public Health Bioethical Issues Bioethics public health. MEDICAL -- Pediatrics. HEALTH & FITNESS -- Children's Health. Public health Newborn screening Newborn infants Bioethics Newborn infants -- Diseases -- Diagnosis SUBJECT United States Form Electronic book Author Olson, Steve, 1956- Berger, Adam C Institute of Medicine (U.S.). Roundtable on Translating Genomic-Based Research for Health. Institute of Medicine (U.S.) ISBN 9780309159555 0309159555 1282917137 9781282917132

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