Description |
1 online resource (xviii, 357 pages) : illustrations |
Contents |
pt. 1. Research biobanking : the traditional approach -- Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan -- Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen -- Information rights on the edge of ignorance / Anne Maria Skrikerud -- The dubious uniqueness of genetic information / Anne Maria Skrikerud -- Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin -- Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler -- Biobanks and our common good / Erik Christensen -- Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand -- Scientific citizenship, benefit, and protection in population-based research / Vilhj́almur Árnason -- pt. 2. Research Biobanking : towards a new conceptual approach -- Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth -- The art of biocollections / Anne Hambro Alnæs -- The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg -- Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer -- Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria -- Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning -- Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand -- In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand |
Summary |
Biobanking is the storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. This title intends to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern forms and formats |
Bibliography |
Includes bibliographical references and index |
Notes |
Print version record |
Subject |
Bioethics.
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Biobanks -- Moral and ethical aspects
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Biological resource centers -- Moral and ethical aspects
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Biological specimens -- Moral and ethical aspects
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Informed consent (Medical law)
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Property.
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Intellectual property.
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Organ donors.
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Biological Specimen Banks -- ethics
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Bioethical Issues
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Biomedical Research -- ethics
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Informed Consent
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Ownership
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Intellectual Property
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Tissue Donors
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Ethics, Research
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Genetic Research -- ethics
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Tissue and Organ Procurement -- ethics
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Biological Specimen Banks -- legislation & jurisprudence
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Bioethics
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Truth Disclosure
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ownership.
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intellectual property.
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BUSINESS & ECONOMICS -- Business Ethics.
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Bioethics.
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Biobanks -- Moral and ethical aspects.
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Biological resource centers -- Moral and ethical aspects.
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Biological specimens -- Moral and ethical aspects.
|
|
Biological Specimen Banks -- ethics.
|
|
Bioethical Issues.
|
|
Biomedical Research -- ethics.
|
|
Informed Consent.
|
|
Ownership.
|
|
Intellectual property.
|
|
Tissue Donors.
|
|
Ethics, Research.
|
|
Genetic Research -- ethics.
|
|
Tissue and Organ Procurement -- ethics.
|
|
Biological Specimen Banks -- legislation & jurisprudence.
|
|
Property
|
|
Organ donors
|
|
Intellectual property
|
|
Informed consent (Medical law)
|
|
Bioethics
|
Form |
Electronic book
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Author |
Solbakk, Jan Helge.
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Holm, Søren, 1963-
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Hofmann, Bjørn.
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ISBN |
9780387938721 |
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0387938729 |
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