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Title Ethical foundations of palliative care for Alzheimer disease / edited by Ruth B. Purtilo and Henk A.M.J. ten Have
Published Baltimore : Johns Hopkins University Press, 2004


Location Call no. Vol. Availability
 W'BOOL  362.196831 Pur/Efo  AVAILABLE
Description xxi, 368 pages : illustrations ; cm
Contents Machine derived contents note: Contents -- Foreword -- Preface -- Acknowledgments -- List of Contributors -- Introduction: Historical Overview of a Current Global Challenge -- Henk A.M.J. ten Have and Ruth B. Purtilo -- I. The Health Care Challenge of Alzheimer Disease: Basic Societal, Pathological, and Clinical -- Issues -- 1. Darkness Cometh: Personal, Social, and Economic Burdens of Alzheimer Disease -- Richard L. O'Brien -- 2. Neuropathology and Symptomatology in Alzheimer Disease: Implications for Caregiving and -- Competence -- Roger A. Brumback -- 3. The Clinical Challenge of Uncertain Diagnosis and Prognosis in Patients with Dementia -- David A. Bennahum -- II. European Voices on U.S. and European Models of Palliative Care -- 4. Expanding the Scope of Palliative Care -- Henk A.M.J. ten Have -- 5. Hospital-Based Palliative Care and Dementia, or What Do We Treat Patients For and How Do -- We Do It? -- Marcel G. M. Olde Rikkert and Anne-Sophie Rigaud -- 6. Elderly Persons with Advanced Dementia: An Opportunity for a Palliative Culture in Medicine -- Pierre Boitte -- III. Philosophical and Theological Explorations -- 7. Autonomy and the Lived Body in the Care of Persons with Severe Dementia -- Wim J. M. Dekkers -- 8. The Moral Self as Patient -- Judith Lee Kissell -- 9. The Practice of Palliative Care and the Theory of Medical Ethics: Alzheimer Disease as an -- Example -- Rien Janssens -- IV. Clinical Ethics Issues: Focus on Patients and Caregivers -- 10. Contemporary Decision-Making Strategies and Their Tendency to Deny the Condition of -- Alzheimer Disease -- Jos V. M. Welie -- 11. Advance Directives and End-of-Life Decision Making in Alzheimer Disease: Practical -- Challenges -- Winifred J. Ellenchild Pinch -- 12. Saying "No" to Patients with Alzheimer Disease: Rethinking Relations between Personhood, -- Autonomy, and World -- Franz J. Illhardt -- 13. The Ethical Challenge of Treating Pain in Alzheimer Disease: A Dental Case -- Gunilla Nordenram -- 14. Alzheimer Disease and Euthanasia -- Bert Gordijn -- V. Organizational Ethics Issues: Educational Initiatives, Laws, and Allocation Decisions -- 15. The Role of Nurses and Nursing Education in the Palliative Care of Patients with Alzheimer -- Disease and Their Families -- Elizabeth Furlong -- 16. The Ethical Dimensions of Alzheimer Disease Decision Making: The Need for Early Patient -- and Family Educational Interventions -- Linda S. Scheirton -- 17. Changing Patterns of Protection and Care for Incapacitated Adults: Perspectives from a -- European Transition Society -- Eugenijus Gefenas -- 18. Social Marginalization of Disabled Persons: Justice Considerations for Alzheimer Disease -- Ruth B. Purtilo -- Commentary: A Clinician's Commentary from a Post-Soviet Society on Organizational Issues of -- Care for Alzheimer Disease -- Givi Javashvili -- VI. Research Underpinnings for an Ethical Model of Palliative Care in Alzheimer Disease -- 19. Biomedical Research in Alzheimer Disease -- Patricio F. Reyes -- 20. Conducting Research in the Alzheimer Disease Population--Balancing Individual, Group, -- Family, and Societal Interests -- S ren Holm -- 21. Drugs and Dementia: Decision Making by Primary Caregivers regarding Pharmacotherapy -- Amy M. Haddad -- Appendix A. The Declaration of Berg en Dal on Ethical Principles Guiding Palliative Care of -- Persons with Alzheimer Disease -- Appendix B. Framework for an Educational Module for Health Professionals -- Index
Notes APPE gift. InGrD
Bibliography Includes bibliographical references and index
Notes Also issued online
Subject Alzheimer's disease -- Patients -- Palliative treatment -- Moral and ethical aspects.
Alzheimer's disease -- Palliative treatment -- Moral and ethical aspects.
Palliative treatment -- Moral and ethical aspects.
Alzheimer's disease -- Patients -- Hospice care -- Moral and ethical aspects.
Alzheimer Disease -- nursing.
Ethics, Professional.
Palliative Care.
Author ten Have, H.
Purtilo, Ruth B.
LC no. 2003017424
ISBN 0801878705 hardcover alkaline paper