Limit search to available items
Book Cover
E-book
Author Proot, Catherine, author

Title Life to be lived : challenges and choices for patients and carers in life-threatening illnesses / Catherine Proot and Michael Yorke
Published Oxford : Oxford University Press, 2014

Copies

Description 1 online resource
Contents Cover; Title Page; Copyright Page; Foreword; Preface; Acknowledgements; Introduction; Contents; Part 1 The patient experience; 1 The challenge of illness and pain; Help me to live, not to stop dying; Pain; Curing and healing; Stress provoked by treatments; Psychological needs in treatment; 2 All may not be lost; Valuing patients as people; Some personal sources of strength; Absorbing interests; Relationship and communication; Supportive and/or challenging characteristics; 3 Trials and adjustment; Inner turmoil; A cancer journey?; Longing for normality and yearning for safety
A network of support4 Towards a changed outlook; The part of life one has not lived; Discovering meaning; A sense of achievement; Recognising one's identity and status; Part 2 The impact on family carers; 5 Demands on the family; Diagnosis and its demands; Logistics; Finance; Teamwork; 6 Lives taken over; Changing experience of time; Priorities and decision making; The reality of unpredictability; 7 Coping with change; Denial and overprotection; Interdependence and mutual impact; Facing a new future; 8 Some personal consequences for the carer; Fatigue and self-neglect; Guilt; Loss; Rewards
Part 3 The professional carers and their roles9 Challenges for the professional carer; Patient-centred care; Finding a common language; Creating and holding a safe space; Flexibility in approach and response; Coping with a backlog of grief; Taking care of themselves; 10 The power and limitations of words; Beyond words ... metaphor and symbol; The metaphorical language of rituals; Beyond communication, encounter; 11 Talking with patients; Breaking bad news; Sharing information; Helping people to be heard; Talking about illness in the family; 12 Chaplaincy and spiritual care
The role of the chaplainCaution not to impose; Spiritual care as giving meaning; Regrets and reparation; Needs, spiritual and/or religious; Overlap of roles; Death and dying; Part 4 Boundaries and resources; 13 Blurred boundaries; Expectations and projections; Shared responsibility; Individual and institution; Information and self-disclosure; The challenge of visiting the dying; 14 A wealth of resources; From being the subject of suffering to an observer of pain; Professional and peer support; Hands-on involvement; Ways to express feelings and find new meaning; Intimacy; Acceptance
Part 5 The next step15 The next step?; The last great adventure; Grief and bereavement; In conclusion; Postscript; Index
Summary 'Life To Be Lived' examines the process of adjustment that patients and their families go through when they face the end of life. Personal research and case-based examples provide a candid look at the challenges from dealing with options from symptom and pain control to adjusting to the psychosocial implications of being ill
Bibliography Includes bibliographical references and index
Notes Online resource; title from home page (viewed on December 17, 2013)
Subject Terminal care.
Terminally ill -- Psychology
Bereavement.
Hospice care.
Terminal Care
Hospice Care
Bereavement
mourning.
HEALTH & FITNESS -- Diseases -- General.
MEDICAL -- Clinical Medicine.
MEDICAL -- Diseases.
MEDICAL -- Evidence-Based Medicine.
MEDICAL -- Internal Medicine.
Hospice care
Bereavement
Terminal care
Terminally ill -- Psychology
Form Electronic book
Author Yorke, Michael, 1939-2019, author
ISBN 9780191765285
0191765287