Description |
1 online resource |
Contents |
Cover; Title Page; Copyright Page; Foreword; Preface; Acknowledgements; Introduction; Contents; Part 1 The patient experience; 1 The challenge of illness and pain; Help me to live, not to stop dying; Pain; Curing and healing; Stress provoked by treatments; Psychological needs in treatment; 2 All may not be lost; Valuing patients as people; Some personal sources of strength; Absorbing interests; Relationship and communication; Supportive and/or challenging characteristics; 3 Trials and adjustment; Inner turmoil; A cancer journey?; Longing for normality and yearning for safety |
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A network of support4 Towards a changed outlook; The part of life one has not lived; Discovering meaning; A sense of achievement; Recognising one's identity and status; Part 2 The impact on family carers; 5 Demands on the family; Diagnosis and its demands; Logistics; Finance; Teamwork; 6 Lives taken over; Changing experience of time; Priorities and decision making; The reality of unpredictability; 7 Coping with change; Denial and overprotection; Interdependence and mutual impact; Facing a new future; 8 Some personal consequences for the carer; Fatigue and self-neglect; Guilt; Loss; Rewards |
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Part 3 The professional carers and their roles9 Challenges for the professional carer; Patient-centred care; Finding a common language; Creating and holding a safe space; Flexibility in approach and response; Coping with a backlog of grief; Taking care of themselves; 10 The power and limitations of words; Beyond words ... metaphor and symbol; The metaphorical language of rituals; Beyond communication, encounter; 11 Talking with patients; Breaking bad news; Sharing information; Helping people to be heard; Talking about illness in the family; 12 Chaplaincy and spiritual care |
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The role of the chaplainCaution not to impose; Spiritual care as giving meaning; Regrets and reparation; Needs, spiritual and/or religious; Overlap of roles; Death and dying; Part 4 Boundaries and resources; 13 Blurred boundaries; Expectations and projections; Shared responsibility; Individual and institution; Information and self-disclosure; The challenge of visiting the dying; 14 A wealth of resources; From being the subject of suffering to an observer of pain; Professional and peer support; Hands-on involvement; Ways to express feelings and find new meaning; Intimacy; Acceptance |
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Part 5 The next step15 The next step?; The last great adventure; Grief and bereavement; In conclusion; Postscript; Index |
Summary |
'Life To Be Lived' examines the process of adjustment that patients and their families go through when they face the end of life. Personal research and case-based examples provide a candid look at the challenges from dealing with options from symptom and pain control to adjusting to the psychosocial implications of being ill |
Bibliography |
Includes bibliographical references and index |
Notes |
Online resource; title from home page (viewed on December 17, 2013) |
Subject |
Terminal care.
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Terminally ill -- Psychology
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Bereavement.
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Hospice care.
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Terminal Care
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Hospice Care
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Bereavement
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mourning.
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HEALTH & FITNESS -- Diseases -- General.
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MEDICAL -- Clinical Medicine.
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MEDICAL -- Diseases.
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MEDICAL -- Evidence-Based Medicine.
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MEDICAL -- Internal Medicine.
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Hospice care
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Bereavement
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Terminal care
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Terminally ill -- Psychology
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Form |
Electronic book
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Author |
Yorke, Michael, 1939-2019, author
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ISBN |
9780191765285 |
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0191765287 |
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