Joseph Merrick, 'The Elephant Man', suffered from Proteus Syndrome - a rare genetic disorder where parts of the body grow out of all proportion. We meet 4 year old sufferer Abigail Lider and her family as they travel to Maryland USA for a week of tests. They also travel to meet other Proteus sufferers learning to live with this incurable condition. In the UK 31 year old Mandy Sellars has a rare form of Proteus Syndrome which causes her legs to be giant while the rest of her body remains petite
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Title from resource description page (viewed Apr. 15, 2014)