Title Axial spondyloarthritis : patient-reported impact in Europe / Marco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J. Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy

Published Cham : Springer, [2022] ©2022

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Description 1 online resource (xxi, 109 pages) : color illustrations Contents Executive Summary -- About the Authors -- Introduction -- Objectives.-Methodology -- Demographic Profile of Survey Respondents -- Diagnosis -- Physical Health -- Psychological Health -- Social Support -- Healthcare -- Habits and Lifestyle -- Employment Status and Productivity -- Fears and Hopes -- IMAS European Survey Strengths and Limitations -- Glossary of Terms Summary This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients’ clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society Bibliography Includes bibliographical references Notes Online resource; title from PDF title page (SpringerLink, viewed September 15, 2022) Subject Spondyloarthropathies. Ankylosing spondylitis. Spondyloarthropathies -- Patients -- Europe Ankylosing spondylitis -- Patients -- Europe Spondylitis, Ankylosing Ankylosing spondylitis Ankylosing spondylitis -- Patients Spondyloarthropathies Europe Form Electronic book Author Navarro-Compán, Victoria, author Bundy, Christine, author Mahapatra, Raj, author Makri, Souzi, author Delgado-Domínguez, Carlos J., author Plazuelo-Ramos, Pedro, author Poddubnyy, Denis, author ISBN 9783030976064 3030976068 9788303097606 8303097601

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