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Book Cover
E-book
Author Lowrance, William W., 1943-

Title Privacy, confidentiality, and health research / William W. Lowrance
Published Cambridge : Cambridge University Press, 2012

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Description 1 online resource
Series Cambridge bioethics and law
Cambridge bioethics and law.
Contents Cover; Privacy, Confidentiality, and Health Research; Series; Title; Copyright; Dedication; Contents; Preface and acknowledgments; 1: Introduction; Health research as a public-interest cause; Privacy protection as a public-interest cause; Health data vulnerability; The challenges; 2: Data, biospecimens, and research; A few essential notions; The e-health revolution; Data and databases; Biospecimen collections; Public research resource platforms; Degrees of sensitivity; Data and biospecimen ownership; What is research, anyway?; 3: Privacy, confidentiality, safeguards; Privacy; Confidentiality
Summary The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward
Bibliography Includes bibliographical references and index
Notes Print version record
Subject Medical informatics.
Information storage and retrieval systems -- Medical care
Medical records -- Law and legislation.
Health services accessibility -- Law and legislation.
Medicine -- Data processing.
Computer security.
Health Services Research -- legislation & jurisprudence
Privacy -- legislation & jurisprudence
Computer Security
Confidentiality -- ethics
Confidentiality -- legislation & jurisprudence
Databases, Factual -- legislation & jurisprudence
Health Services Research -- ethics
Medical Informatics Applications
Medical Informatics
LAW -- Medical Law & Legislation.
Medicine -- Data processing
Computer security
Health services accessibility -- Law and legislation
Information storage and retrieval systems -- Medical care
Medical informatics
Medical records -- Law and legislation
Vertraulichkeit
Forschung
Medizin
Gesetzgebung
Form Electronic book
ISBN 9781139518819
113951881X
9781139107969
1139107968
9781139516952
1139516957
9781107696631
1107696631