| Description |
1 online resource (309 pages) |
| Contents |
Intro; Preface; Acknowledgments; Contents; Contributors; 1: Neuropalliative Care: An Introduction; What Is Palliative Care?; The Palliative Care approach; Is There a Need for Neuropalliative Care?; What Are Unique Features of Palliative Care in Neurological Disease?; How Adequate Is Our Current Approach?; How Should the Palliative Care Approach Be Integrated into Neurological Care?; References; Part I: Disease and Symptom-Specific Considerations; 2: Severe Acute Brain Injury; Symptom Management I: The Acute Setting; Caregiver Support; Estimating and Communicating Prognosis |
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Serious Illness Conversation TriggersEstablishing Goals of Care; Best Case, Worst Case, and Most Likely Case; Shared Decision-Making: Balance Between Paternalism and Autonomy; Symptom Management II: The Sub-acute and Chronic Setting; EOL Care Including Hospice; Research Agenda; References; 3: Prolonged Coma and Early Disorders of Consciousness; Estimating Prognosis; From Coma to Vegetative State; Vegetative vs. Minimally Conscious State; Symptom Detection and Management; Unresponsiveness; Pain; Paroxysmal Sympathetic Hyperactivity Syndrome; End of Life Care; Education and Research Agenda |
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Symptom Burden, Needs Assessment and Triggers for Palliative Referral in PDManaging Symptoms in Advanced PD; Simplifying Medication for Motor Symptoms in Advanced Illness; Dementia; Psychosis; Sleep Disorders, Daytime Sleepiness and Fatigue; Dysautonomia; Dysphagia and Sialorrhea; Pain; Withdrawing Levodopa; Caregiver Burden; Education and Research Agenda; References; 6: Dementia; Common Types of Dementia; Alzheimer's Disease Phenotype: Early Stages; Alzheimer's Disease Phenotype: Advanced Stages; Estimating Prognosis; Trajectories of Death; Prognostication |
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The Palliative Care Approach Across Dementia StagesMild Dementia; Moderate Dementia; Severe (Advanced) Dementia; Capacity Evaluation; Symptom Assessment and Management; Cognitive Treatment; Dysphagia and Weight Loss; Behavioral and Psychological Symptoms; Caregiver Support; End-of-Life Care; Education and Research Agenda; References; 7: Multiple Sclerosis; Presentation and Disease Stages; Treatment and Multidisciplinary Team-Based Care; Prognosis; What Is Severe MS?; Communication Challenges; Symptoms and Management; Pain; Spasticity; Fatigue; Tremor and Ataxia; Dysphagia; Dysarthria |
| Summary |
This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas |
| Bibliography |
Includes bibliographical references and index |
| Notes |
Seizures |
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Includes index |
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Online resource; title from digital title page (viewed on July 08, 2019) |
| Subject |
Nervous system -- Diseases -- Palliative treatment
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Neurodegenerative Diseases -- psychology
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HEALTH & FITNESS -- Diseases -- General.
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MEDICAL -- Clinical Medicine.
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MEDICAL -- Diseases.
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MEDICAL -- Evidence-Based Medicine.
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MEDICAL -- Internal Medicine.
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Neurology
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Palliative treatment
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| Form |
Electronic book
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| Author |
Creutzfeldt, Claire J., editor
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Kluger, Benzi M., editor
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Holloway, Robert G., 1963- editor.
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| ISBN |
9783319932156 |
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3319932152 |
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9783319932163 |
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3319932160 |
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